This is a draft post. It's useful but still needs work.
A few weeks ago I received a formal ADHD diagnosis. I believe it’s probably mixed with autism but that’s another assessment for another day.
This page will be a place to share information about my experience.
Superpowers
Before I go too deeply into my negative symptoms and mitigators, it’s useful to acknowledge the many superpowers that come with ADHD. Here are a few I see in myself.
- Boundless optimism, enthusiasm, and energy
- Ability to bounce back repeatedly to nearly any setback
- Hyperfocus, prolific output (when properly inspired & directed)
- Very high tolerance for uncertainty & chaos
- High ability to synthesise new ideas and understand complex concepts
- Able to quickly devise creative, practical solutions to seemingly intractable problems
- Ability to follow multiple tangents and diversions on a path without losing sight of the ultimate goal (even if those diversions sometimes take longer than we would like)
- Fast reaction times (because I’m always dropping things)
- An appreciation for writing things down and creating useful structures for individuals and teams (because I’m so reliant on them myself to function)
- Ability to see and appreciate many different perspectives, angles, or aspects of any situation and different players involved
- Rapid deep empathy, sometimes becoming debilitating sympathy
- Ability to rapidly pursue several experimental paths in tandem until a clear “winner” is found
- Ability to connect and form relationships between disparate elements and see an emergent “big picture” that isn’t obvious to most people
Helpful actions
- Practice mindfulness
- Exercise (running, walking, cycling, sports, tai chi, yoga, dance)
- Spend time in nature
- Socialise
- Be part of a community
- Get physical contact
- Avoid sugar, caffeine, and alcohol
- Get plenty of sleep
- Journal, blog, write
- Make space to create things (music, art)
- Seek out and create rhythmic repetitive experiences (art, music, dance)
- Listen to music
Books
- ADHD 2.0 - Recommended by a friend, does a great job of presenting the many “superpowers” of ADHD.
- Driven to Distraction - An earlier book by the same authors
- The ADHD Effect on Marriage - This one practically jumped off the shelf at a second hand bookshop. I wasn’t looking for it but it found me.
Symptoms & experiences
Here are a few of my symptoms and experiences in no particular order. More to come.
Forgetfulness
- Having extreme anxiety around forgetting events (paying bills, birthdays, anniversaries, meetings, calls, etc)
- Needing to write everything down
- Having to take notes constantly so I don’t forget things as soon as someone tells me them
- Forgetting them anyway
- People becoming upset when I forget what they said to me minutes before
- Setting reminders and alarms throughout the day to get me to do things
- Putting post-it notes everywhere
Time-blindness
- Always being late
- “Lying” about when I’ll do something
Distractability
- Being distracted by anything in my visual field
- Mrs. Trice my kindergarten teacher who said: “Peter is very easily distracted”
- Having to rigorously schedule things and make appointments for even routine tasks (e.g. doing laundry)
- Feeling a buzz when my schedule is back to back
- Feeling constantly driven, restlessly creative
- Daydreaming
Hyperfocus
- Finding hyperfocus in various hobbies and activities like computer programming, making music, writing, working
- Getting totally absorbed into a task when it has clear next steps and compelling outcomes
- Loving writing code (forces me to organise my thinking, and rewards me instantly when I do)
- Loving to improvise on the piano as a way to process and think and recenter (but hating to practice and learn other people’s music)
- Needing music to concentrate (especially ambient, dance, techno - nothing with words)
- Finding solace and structure in journaling
Impulsivity
- Speaking out of turn
- Completing people’s sentences to show them I’m listening
- Struggling to listen, understand, and remember when people are speaking to me
- Not capturing the emotional impact of people’s words
- No patience for slow bureaucratic processes
- Needing to limit my sugar and caffeine intake so I don’t get jittery
Planning & structure
- Planning requires lots of deliberate effort
- Terrible at making big decisions (I do it slowly with great anxiety and flip back and forth a lot until time runs out and pressure forces me into a decision)
- Lots of anxiety around making the wrong decision, not trusting my gut or the evidence I’ve gathered
- Loving & relying heavily on the pomodoro technique
- Having to limit the things in my pocket (keys, wallet, phone, earbuds) to prevent anxiety
- Constantly underestimating how long anything will take and then being late
- Choosing to work on what I prefer to do rather than what I need to do
- Being really drawn to mindfulness (sometimes needing meditation like a drug)
- Needing time between things to decompress and switch gears
- Meetings & workshops running over if I don’t plan properly and practice
- Overwhelmed when asked to remember more than 3 things to do or buy
- Needing a lot of routine & structure to function at a basic level
Sleep
- Needing a lot of sleep, feeling unusually exhausted most of the time.
- Over-napping
- Not being able to sleep if I drink any caffeine or alcohol or sugar before bed
- Having to stop intense thinking several hours before bed so I can sleep
- Needing to shower before bed to sleep
- Dimming the lights hours before bedtime so I can sleep
- Listening to relaxing music before bed so I can sleep
- Needing quiet and unstructured time
- But becoming anxious with too much unstructured time
- Imagination as medicine
- Having to sleep with earplugs and an eye mask or I wake up repeatedly
Movement, touch, and connection
- Finding I focus better after regular exercise and time outside
- Pacing & walking when thinking about complex problems
- Loving walking aimlessly through cities
- When hiking or going on walks, wanting circular routes so I don’t have to retrace my steps
- Enjoying tai-chi, yoga, dancing, anything around free movement – but strongly disliking any structured “sport” type activity
- Craving physical touch
- Feeling lonely a lot of the time
- Struggling to read people’s emotions and reactions
Connection, Praise, criticism
- Need for connection
- Fears of negotiation & competition
- Deeply discouraged by even minor criticism even from people I hardly know
- Deeply motivated by even minor praise
Examples from real life
- Making my girlfriend late for work by not being ready
- Being late for everything
- Our family being the last to board our flight to the US
- Missing a flight when travelling alone
- More all-nighters in school than I can count
- The “homework hat”
Impact
- Previous to my diagnosis being angry and disappointed at myself for the above and feeling really sad.
- Angry fed-up spouse